This is a question that many people have and often do not ask about. We found that even people who have had bronchiectasis for many years still were uncertain about how it may progress or what may happen in the future.
Here are some quotes from patients who took part in interviews about their experiences:
“I think, maybe they’re things that can’t be answered but, you know, I’m still curious, ok, with the condition as it is, and if I look after myself with exercise and do the physio and keep infections at bay, is it going to get worse regardless? Or actually will that keep it as is? I still don’t really know the answer to that, and that’s quite important to know.” Mike, 43
“Curable? Could I have an operation to just sort of clear it out? Could I control it, basically?... I wasn’t really shocked because I felt fine at the time, but obviously in future I just want to know what the deal would be.” Tom, 33
“I suppose you want to know what could make it get worse, if it could get worse, what could cause that. Or, is this the level that’s it going to be if I you know do what I’m told, as I don’t know how things might progress as I’m older and less active.“ Mariella, 63
"I always had it in my head I was going to die with it you know, and that’s what used to worry me." Celia, 67
This website has been developed by doctors and patients as part of a research study. The site is designed to meet the information needs of people who have bronchiectasis and their families and carers and help them manage the condition.
Currently this website is being trialled as part of the ongoing study and is only available to those within the study. For details about the research study please go to http://public.ukcrn.org.uk.
If you would like more information about the study, either if you think you may be eligible to join this study, or if you would like to be able to look at this site in the future or hear about the research outcomes then please email firstname.lastname@example.org
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